Jacobean Posted September 22, 2011 Report Share Posted September 22, 2011 Oh Jules I wondered where you had been. So sorry There should be a little office somewhere in the hospital where PALS are based. Sending every good thought and hope your mum receives appropriate treatment very soon. You know where we are any time you need to offload. You could ask the distance healing network to put your mum on their lists too. I don't know the link but I'm sure someone here will give it to you shortly. Link to comment Share on other sites More sharing options...
hugapup Posted September 22, 2011 Report Share Posted September 22, 2011 I'm so very sorry Jules, I can quite understand your anger and frustration as I was a nurse and know how some doctor's can behave and not very sympathic towards a patient. We often had to pick up the pieces. PALS are very good and helpful. Sending lots of good thoughts and hugs to your Mother and you Cheryl & Mike xxx Link to comment Share on other sites More sharing options...
safneo Posted September 22, 2011 Report Share Posted September 22, 2011 Jules I am so very sorry - I can quite understand your anger and frustration, my mother too was told on her own and then left without any further information, I'm still very annoyed about it. My MIL was also told the news on her own on Christmas eve. She told us at visiting Christmas day. Sorry for both Jules and Snow. Its tough to deal with so lean on whoever you can. Definately get the PALS team involved. They can make such a difference. What area does your mum live? Just wonder if there are any of us local that can help? Link to comment Share on other sites More sharing options...
greys mum Posted September 22, 2011 Report Share Posted September 22, 2011 Sending loads of positive thoughts to your mum. As others have said the local hospice (at home)and the Macmillan nurses were brilliant, when my mum needed them. Thinking of you all. Link to comment Share on other sites More sharing options...
Karen Posted September 23, 2011 Report Share Posted September 23, 2011 Thinking good thoughts for your mum and you too Jules Link to comment Share on other sites More sharing options...
lil_angel Posted September 23, 2011 Report Share Posted September 23, 2011 Lots of good thoughts for your Mum Jules. My Mum has had cancer twice and thankfully received excellent care and treatment. I hope that once your Mum starts her treatment that she will receive the same. Link to comment Share on other sites More sharing options...
Spins4me Posted September 23, 2011 Report Share Posted September 23, 2011 So sorry about your Mum. This is the link for the distance healing network. http://www.the-dhn.com/ If you go to the site there is a form to fill in with your Mum's name and location etc. If you don't feel up to filling it in, I'd be happy to do it for you. :GroupHug: Link to comment Share on other sites More sharing options...
kats n greys Posted September 23, 2011 Report Share Posted September 23, 2011 :GroupHug: Thinking of your Mum. Another vote for getting PALS involved. Link to comment Share on other sites More sharing options...
Mags Posted September 23, 2011 Report Share Posted September 23, 2011 Sending loads of good thoughts for your Mum. I'm lighting a candle to send white light for you all (and for Snow's Mum too) :GroupHug: Link to comment Share on other sites More sharing options...
JulesB Posted September 23, 2011 Author Report Share Posted September 23, 2011 Thanks so much for the good wishes everyone. It's very sobering to read about other people's experiences, both the positive and the not so good. I feel like we are in a lottery at the moment so it really helps to know that people are rooting for my mum and we are not on our own. I'll look into whether there are any support groups local to her, she's in East Yorkshire, between Beverley and Hull. Snow, I haven't kept up lately but I'm so sorry to hear about your mum too. I am sending her, and you, many positive thoughts and good wishes Barbara, thanks for the distance healing network, I'll definitely fill out the form Mum rang me earlier to say the community Macmillan nurse visited yesterday. Mum has a fabulous set of Macmillan nurses that are attached to the hospital but this is the first community Mac nurse to visit. Apparently she just turned to mum in the middle of a lovely chat sitting in the sun and bluntly asked if she had thought about what will happen after the treatment Mum said she seriously considered losing her manners and saying "Oh don't beat about the bush, just cut to the chase and ask me how I feel about croaking, why don't you?" It's not really funny, but we were screeching with laughter on the phone, it's the first time mum has had a proper laugh in ages, maybe it's part of the therapy Link to comment Share on other sites More sharing options...
rufus the wonderdog Posted September 24, 2011 Report Share Posted September 24, 2011 Thinking of both you, and your mum, Jules - hope she gets some help from her treatment Link to comment Share on other sites More sharing options...
Brenda Posted September 25, 2011 Report Share Posted September 25, 2011 Thinking of you and your mum at this very difficult time. Appalling way she has been treated. Link to comment Share on other sites More sharing options...
Ian Posted September 27, 2011 Report Share Posted September 27, 2011 Thanks so much for the good wishes everyone. It's very sobering to read about other people's experiences, both the positive and the not so good. I feel like we are in a lottery at the moment so it really helps to know that people are rooting for my mum and we are not on our own. I'm also in East Yorkshire. I didn't meet the MacMillan nurses myself but they are certainly there. The hospice I referred to is Dove House & they have day units, support for carers etc as well as ultimately in patient care. http://www.dovehouse.org.uk/ Link to comment Share on other sites More sharing options...
Helly Posted September 28, 2011 Report Share Posted September 28, 2011 Very sorry to hear of your mums experiences Have just been through similar with Dad, and its so damned frustrating when tests get delayed and pushed back and changed. I threw the odd hissy fit with doctors during dads many stays in hospital which seemed to initiate action, then it would stop again. Stay strong and determined Link to comment Share on other sites More sharing options...
Ceredigion Animal Rescue Posted September 28, 2011 Report Share Posted September 28, 2011 If there is a hospice near her it would be worth seeing if she could go for day care - my mother goes once a week, she gets lunch, she joins in the craft sessions and most importantly (dad has Alzheimers and is almost deaf) she gets people to chat with - not just about her illness. She was in a bit of a state when the MacMillan nurse asked her about whether she wanted to be in the hospice or at home when her time was up but now she realises that they ask that at the very start so the patient's wishes are known and the matter can then be discretely dropped rather than asking someone who only has days left. She was also worried about being referred to the hospice despite us going to visit and being told about the day care - but now she has been, and has also seen people who stay in for a few days then go home again she is far more relaxed about it. I have to say the care and empathy she has received is fantastic - she is in her 80s, she has a serious lung problem, a pacemaker and now cancer in her bones and breast, but from the consultants to the nursing staff everyone has made her feel valued, taken time out to discuss things with her (and allowed for the fact she is a fractious old woman as I know from experience!!!) Link to comment Share on other sites More sharing options...
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