Jazz Posted March 9, 2021 Author Report Share Posted March 9, 2021 12 Link to comment Share on other sites More sharing options...
Jazz Posted March 10, 2021 Author Report Share Posted March 10, 2021 morrrnin be safe xx Link to comment Share on other sites More sharing options...
owl Posted March 10, 2021 Report Share Posted March 10, 2021 Good morning. xx Link to comment Share on other sites More sharing options...
Jazz Posted March 10, 2021 Author Report Share Posted March 10, 2021 hospital rung. asked me what I think it is! wanted to see me urgently, in 2 months because they arnt allowed to see anyone till then. have another blood test. thats it. what a pile of bull! so havent washed for over a week, nighty is filthy and I stink, but carry on for another 2 months! Link to comment Share on other sites More sharing options...
Jazz Posted March 10, 2021 Author Report Share Posted March 10, 2021 so.... got an email from sky last month saying if i kept my mobile contract, ill get a £25 voucher, offer runs out 12 march. just rung, lady speaks to mobile section, they didnt send the email, its a scam, that offer doesnt exist. so why did the number on it come to you at sky? sorry its a scam. but talk to the cancellations team. ok lovely lady says yes it was from us, it is real, ill send you a voucher. shes sorted out some other bits on the mobile at no charge I do hope the first ladys call was recorded as thats not on 1 Link to comment Share on other sites More sharing options...
owl Posted March 10, 2021 Report Share Posted March 10, 2021 Jazz, it sounds as if you need some help from a home carer if you are too poorly to manage personal care. Have you asked for any, or has Lewis? Link to comment Share on other sites More sharing options...
Jazz Posted March 10, 2021 Author Report Share Posted March 10, 2021 I got offered it but I said it depended on what the blood test results were today. Ive got to have some more so will know after them if this is long term Link to comment Share on other sites More sharing options...
eve Posted March 10, 2021 Report Share Posted March 10, 2021 Jazz, you can have short term care while you're waiting on your next results. Please accept it, don't struggle on if help is available. 2 Link to comment Share on other sites More sharing options...
Jazz Posted March 11, 2021 Author Report Share Posted March 11, 2021 morning all be safe out there, love you all xxxx Link to comment Share on other sites More sharing options...
Jazz Posted March 12, 2021 Author Report Share Posted March 12, 2021 morning all xxx Link to comment Share on other sites More sharing options...
owl Posted March 12, 2021 Report Share Posted March 12, 2021 Good morning Jazz. Any progress? x Link to comment Share on other sites More sharing options...
Jazz Posted March 12, 2021 Author Report Share Posted March 12, 2021 my injection yesterday has kicked in, didnt have morphine before bed. getting some jobs done. at ruddy last! gone through 100 painkillers in 4 weeks 1 Link to comment Share on other sites More sharing options...
eve Posted March 12, 2021 Report Share Posted March 12, 2021 Glad the injection is working Jazz - don't over do the housework though lol xx Link to comment Share on other sites More sharing options...
Jazz Posted March 12, 2021 Author Report Share Posted March 12, 2021 ive made the most of being out of my morphine haze, and booked to see rocky horror next year yeaaaa Link to comment Share on other sites More sharing options...
suzeanna Posted March 12, 2021 Report Share Posted March 12, 2021 Glad you are feeling a bit brighter Jazz. We've got the dvd of the Rocky Horror, still enjoy seeing Tim Curry in basque etc. Interesting appointment with my oncologist today. The cancer has progressed (boo!) but the dilated aorta hasn't got any worse (hurrah!) . On the downside, I do now have a blood clot in the aorta. I said maybe it'll patch up the dilated bit, which he found rather funny. I also have a small amount of pleural effusion but "nothing to worry about." That's ok then. He umm'd and ahh'd for a while, mentioned tamoxifen then said but that is known to raise the risk of blood clots, so no. Then exemestane..but that can cause a lot of muscle and bone pain and you won't want that. Vigorous head shake from me. Come to the decision that I'll try the oral chemotherapy, much as I don't really fancy the idea. I have to go over to Sheffield on Monday morning to have a particular blood test to make sure I'm not missing a particular enzyme before they can start me on the chemo...as if you are there is a risk of very serious side effects or death. He spoke on the phone to a cardiologist and on his advice has given me steroids. I read the leaflet carefully and it says patients with an underactive thyroid or fibromyalgia shouldn't take them. As I have both, that's them consigned to the cupboard. Just realised, the day I'm due to see him again to start the chemo, blood test allowing, is April 1st! All Fool's Day, hope that's not a bad omen. Link to comment Share on other sites More sharing options...
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